Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.

Saturday, March 14, 2009

Emersyn Is Now Recovering From Her G-Tube Surgery...She Did Great!

Hi Everyone,

Hope you and your loved ones are all doing well. Just wanted to post a quick update and thank you all for your thoughts and prayers while Emersyn was in the hospital for her surgery. We have been home for two weeks now and Emersyn is doing great. Her surgery went very well and she was a real trooper! Emersyn captured the hearts of every doctor, nurse, resident and passerby in the hospital during her stay :-) With her IV pole, pulse ox and g-tube in tow, we tried to make the best of a crappy situation as we pulled her around for hours in one of the radio flyer wagons on the ward which she loved! We were all so happy to be home after a very rough four days at Mac. The g-tube has been a learning curve but we have adapted quickly and are happy to see Emersyn tolerating her feeding schedule well. Thank-you all for your love and support it really does help us make it through each day.
Lots of love,
Melanie, Jason and Emersyn xoxo