Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.

Sunday, February 21, 2010

Watched Videos of Emersyn...........

Watched videos of Emersyn this weekend....very tough. She was so 'alive' and beautiful and funny. She brought out the best in us. If people are wondering how we are doing or if we are ok, I guess the honest answer is we are broken, furious, devastated, angry and the list goes on. The true answer to the usual "how are you"? is not well thank-you. Not well even a little bit. The truth is it does NOT get easier with time, it gets different and in some ways harder. We take breaks from focusing on how hard it is b/c if we did not we would implode. So what I am trying to say is, even if we give a smile on the outside or look as though we are ok we really and truly are not.......

Sunday, February 14, 2010

For My Daughter On Valentine's Day...

It’s Valentine’s Day and we want you to know that our love for you Emersyn continues to grow,
We think of you every second of every single day and we have been broken my love since you went away.
We know your spirit is with us and you live in our hearts but it is so very hard to be physically apart. As we look back to this special day last year we remember those moments and hold them so dear.
You sat with daddy and read your favourite book and melted mommy’s heart with just one look, Why can we not have your sweet face to kiss and your warm hands to hold and watch you grow up as we get old?
This loss is so backwards, so unnatural and cruel, we would have given anything to see you grow up and be a big girl at school.We look for signs that you are with us each day, sometimes doubt finds us but you send reminders our way, A bird flying by or the breeze blows our hair, it’s like you are telling us that you are still there.
As we visit your grave and the sun hits our face we feel you saying “hi mom and dad I love you, I’m ok and I really like this place”.
It’s Valentine’s Day and we have a huge hole in our heart but we know one day we will be whole again when we are no longer apart.
Love you my precious Valentine AngelLove Mama and Daddy xoxoxoxoxo

Friday, February 12, 2010

Families of SMA Canada Has a Chance to Win $20,000!

Show us your Goodness Charity Giveaway by Riceworks

We are proud to announce that Families of Spinal Muscular Atrophy Canada (FSMAC) has been nominated as one of the 33 charities that could win either $20,000 for the 1st Place Grand Prize Winner, $5,000 for 2nd or 3rd place or $1,000 Sponsor’s Choice awards for the remaining top 30 charities. Why Vote? *SMA is the number one genetic killer of children under the age of two. *1 in 35 people carry this killer gene, it is ME it could be YOU. *1 in 6,000 babies is born with SMA every year. *Our beautiful daughter Emersyn Paige passed away from this killer disease at the age of 7 months old on April 7th, 2009. *There is not enough money for a treatment or a cure. Please help us win to find a cure for SMA! Go to http://www.facebook.com/l/964a1;www.showusyourgoodness.com and vote for FSMAC from March 16th - April 30th, 2010. The winners will be announced on May 5th, 2010. To listen to the charity podcast where Tricia Ryan interviews Theresa Van Fraassen about SMA, please click on the link below http://www.facebook.com/l/964a1;www.showusyourgoodness.com/blog/?p=241 Anyone in Canada and the United States can vote. Thank you in advance for voting to help save the lives of innocent babies and children, Sincerely, Melanie, Jason and our angel
Emersyn Paige Klomp

Thursday, February 11, 2010

Love and Grief Are Very Much Alike.........

"In some ways, love and grief are very much alike. They both have the power to forever change our lives. Just as I surrender to love, I must surrender to my grief. My grief journey has no one destination. I will not 'get over.' The understanding that I don't have to be done is liberating. I will mourn my childs death for the rest of my life." ~ Dr. Alan Wolfelt - Ph.D, International Grief Educator & AuthorSee More

Friday, February 5, 2010

Happy Birthday Daddy.......

Happy Birthday to my incredibley brave and amazing husband. You are my rock and the one person who I know truly 'gets it' as only you know, love and miss our beautiful Emersyn as much as I do. You are my partner in life and in grief. Emersyn loves her daddy and wishes you a very special day. I remember your birthday la...st year when the three of us had a cupcake party for you and even though we were so very sad and scared about SMA, Emersyn still managed to brighten up your birthday and make it extra special. I know she is with you today sharing her warm light and love.
Love you,Mommy and Emmy xoxoxoxoxoxoxo