Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Sunday, February 21, 2010

Watched Videos of Emersyn...........

Watched videos of Emersyn this weekend....very tough. She was so 'alive' and beautiful and funny. She brought out the best in us. If people are wondering how we are doing or if we are ok, I guess the honest answer is we are broken, furious, devastated, angry and the list goes on. The true answer to the usual "how are you"? is not well thank-you. Not well even a little bit. The truth is it does NOT get easier with time, it gets different and in some ways harder. We take breaks from focusing on how hard it is b/c if we did not we would implode. So what I am trying to say is, even if we give a smile on the outside or look as though we are ok we really and truly are not.......

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