Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Friday, February 12, 2010

Families of SMA Canada Has a Chance to Win $20,000!

Show us your Goodness Charity Giveaway by Riceworks

We are proud to announce that Families of Spinal Muscular Atrophy Canada (FSMAC) has been nominated as one of the 33 charities that could win either $20,000 for the 1st Place Grand Prize Winner, $5,000 for 2nd or 3rd place or $1,000 Sponsor’s Choice awards for the remaining top 30 charities. Why Vote? *SMA is the number one genetic killer of children under the age of two. *1 in 35 people carry this killer gene, it is ME it could be YOU. *1 in 6,000 babies is born with SMA every year. *Our beautiful daughter Emersyn Paige passed away from this killer disease at the age of 7 months old on April 7th, 2009. *There is not enough money for a treatment or a cure. Please help us win to find a cure for SMA! Go to http://www.facebook.com/l/964a1;www.showusyourgoodness.com and vote for FSMAC from March 16th - April 30th, 2010. The winners will be announced on May 5th, 2010. To listen to the charity podcast where Tricia Ryan interviews Theresa Van Fraassen about SMA, please click on the link below http://www.facebook.com/l/964a1;www.showusyourgoodness.com/blog/?p=241 Anyone in Canada and the United States can vote. Thank you in advance for voting to help save the lives of innocent babies and children, Sincerely, Melanie, Jason and our angel
Emersyn Paige Klomp

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