Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Tuesday, June 29, 2010

Captain R.Wilson Public School ~ Soccer Match for SMA!














































Hi Everyone!

I want to send out a HUGE thank-you to all of the staff, students and parents in our CRW school community for helping to make today’s “Soccer Match for SMA” an extraordinary success! The amount of awareness about SMA that was created was phenomenal and to top it off more than $800 was raised for Emersyn’s Entourage for the 2010 Rebecca Run! Thanks to everyone’s support today Emersyn’s Entourage has now raised a whopping $9,100 towards a CURE for SMA and our school has helped to tip the scales.

Jason and I would like to send out a special thank-you to Abi Stupple and Jacklyn Stevenson for planning and organizing this awesome event. You guys did such an outstanding job of pulling everything together in such a creative, fun and organized way.

Thank-you to Sarah Swackhammer for sourcing out and ordering our eye catching red and black CURE SMA t-shirts they looked great. Thank-you to Sean Marks for coming back to the ship to help out the crew it was great to see you again.

Thank-you to Families of SMA for shipping us over 600 CURE SMA bracelets. It was amazing to see the entire school wearing their SMA bracelets with so much pride!

Another special thank-you to all of the staff and students who played in the game you guys were amazing and all of you gave 150% on the field and it really showed. We would also like to thank Laura Swanson for helping to bring back some former CRW students to play in the match who are now in high school that meant a lot to see them there. Thank-you to Drew and Christian for co-ordinating and coaching our fantastic student soccer team you guys were outstanding. The music really helped to pump up the crowd so thank-you to Scott for putting on such a great show. Nada, many thanks for co-ordinating the half-time show, the “cha-cha slide” was a big hit! A big thank-you to Alka and Sheilagh for all of your ongoing support it means the world to us. Many thanks to all of the staff, students and parents who came out today to watch the event and/or make a donation or buy a t-shirt for SMA we cannot tell you how much we appreciate all of your efforts!

We would like to say one more special thank-you to our daughter Emersyn, whose life, legacy and spirit continue to inspire and bring people together to do good things and remember what is important in life. As I was snapping photos during the game this morning two of the most beautiful dragon fly’s hovered over me long enough for me to take their picture. I do not believe in co-incidences any longer so let’s just say that Emersyn was there with all of us and wants you all to know how proud she is of everything all of you continue to do to honour her life, support our family in our grief journey and help to find a CURE for SMA. Once again, CRW has come together for Emersyn and SMA and once again it was a tremendous success and we are so very humbled, grateful and deeply touched by everyone’s love and support you are all AMAZING!

With so much appreciation and many thanks for a great day that I will never forget,Melanie,

Jason and our angel Emersyn Paige Klomp

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