2011 Rebecca Run for SMA - Emersyn's Entourage Registration Cut off Date Fast Approaching!

Hi Everyone!

Just a friendly reminder that the registration cut off date for the 2011 Rebecca Run for SMA is FAST approaching! If you plan on joining us on Saturday July, 9th at Fairy Lake in Newmarket in the walk/run/roll for a CURE for SMA the devastating disease that took the life of our beautiful daughter Emersyn, then please go to the following link to register before June 9th to be a part of “Emersyn’s Entourage” http://www.events.runningroom.com/site/?raceId=6220. This amazing event sells out every year so don’t miss out on being a part of this very important day!

When registering please remember to indicate that you would like to be a member of “Emersyn’s Entourage” to help us reach our goal of 100 members on our team and also to receive your Emersyn’s Entourage running shirt. If you are unable to attend the 2011 Rebecca Run for Spinal Muscular Atrophy and would still like to help us in finding a CURE for SMA you can sponsor us for the event by clicking on the following link https://www.runningroom.com/dashboard/donations/index.php?raceId=6220&eventId=19961&memberId=UTEKOAFtBWYBaFVlUWY%3D&item=8&guest=1.

All proceeds from the 2011 Rebecca Run for SMA will be given to Families of SMA Canada towards finding a CURE for this terminal disease. Here are just a few quick facts about SMA and the main reasons why we are asking for your help:

*SMA is the NUMBER ONE GENETIC KILLER of children under the age of two

*1 in 6,000 babies is born with SMA in Canada every year

*1 in 35 people carry the gene for SMA – it is NOT a rare disease

*There is currently no treatment and no cure

*SMA has been deemed one of the most ‘curable’ diseases by the National Institute of Health and is considered a ‘gateway’ disease in finding a CURE for other neuromuscular diseases such as ALS and Parkinson’s

* Both Jason and I are carriers of the SMA gene deletion and had no idea.......what if you are a carrier....what if this was your child?

* SMA research receives no government funding so it is up to the ‘people’ to come together and raise the dollars needed to help save the lives of beautiful children that have been affected by this devastating disease

Thank-you to everyone who has registered for Emersyn’s Entourage or sponsored us so far. We are so very grateful for your amazing support! Please let us know once you have registered so we can update Emersyn’s blog.

For updates on Emersyn’s Entourage please visit her blog at www.emersynpaige.blogspot.com

Sincerely and with so much thanks and hope,

Melanie, Jason and our Angel Emersyn Paige Klomp

“Together we CAN find a CURE for SMA”

For more information on the 2011 Rebecca Run for SMA please visit www.rebeccarun.com