Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.

Sunday, July 8, 2012

Emersyn's Entourage and the 2012 Rebecca Run for SMA!

Thank-you to everyone who braved the intense rain storm yesterday to come out and show your support for the 2012 Rebecca Run for SMA!! To everyone who registered for Emersyn’s Entourage but could not make it due to the intense weather conditions we totally understand - it was pretty bad out there! We thought the day was going to be cancelled when we arrived due to lightning, thunder and swirling winds -yikes (we were literally holding our tents down so they wouldn’t fly away!)! BUT thankfully Emersyn and her Angel friends were watching over us like they always do and the rain cleared just enough to keep this vitally important event going!

To our family and friends of Emersyn’s Entourage who continue to register and /or sponsor us every year in honour of Emersyn and everyone affected by SMA how can we thank you enough?! Jason and I are able to do these events because of all of you who continue to let us lean on you as we try to figure out this world without Emersyn and find a CURE for SMA. We could not walk down the raceway and see our daughters beautiful face on her 'angel sign' without the loving energy that you all bring and send to us on this very emotional day. It was also an honour and great comfort to spend time with our SMA family and our amazing SMA warriors who inspire us and motivate us to keep going every day. It was also very emotional to walk the raceway for the first time with our sweet Isla in honour of her big sis. 

We had the chance to meet some amazing new SMA warriors this year and of course little Miss Stella the beautiful 2012 Race Honouree sure did capture our hearts! We also want to thank the very hard working Rebecca Run Race Committee and the outstanding team of Volunteers - without all of you this day would not be possible! And a huge thank-you to the incredible Sponsors of this annual event you guys have outdone yourselves once again!

The graceful yet searing and powerful strength of the SMA family and friends community continues to shine through every year. Our new President of FSMAC Susi and her wonderful daughter Holli who has SMA Type 2 also braved the rain as they flew in from BC to meet everyone and take part in the day. It was great to meet you both! And despite the crazy weather in true ‘SMA Community Form’ over $140,000 was raised this year towards a CURE for SMA!! AMAZING!! Without these community driven fundraisers there would be no funding allocated towards a CURE for SMA and that would be a tragedy. SMA has been deemed “one of the most CURABLE diseases” by the NIH.

To everyone who continues to help us find a CURE for SMA and support each other on this journey thank-you is not enough but hopefully knowing you are helping to raise money while providing comfort and HOPE to so many children, adults and families affected by SMA will fill your heart with as much love as it does ours.

Can’t wait to see you all next year and make some more magic!

Due to the rain we were unable to take as many pictures as we normally (sorry if we missed getting your pic we do like to include everyone!) would but feel free to check out this link to view some of the pictures from the day!

Much love, thanks and HOPE to you and your families,


Melanie, Jason, Isla and Angel Emersyn xoxo

"Together we CAN find a CURE for SMA"

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