Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Sunday, July 7, 2013

2013 Emersyn's Entourage - Thank-you!!

Dear Emersyn’s Entourage,


Jason and I are once again so honored and grateful to have such loyal and supportive friends and family! To all of you who signed up for the 2013 Rebecca Run for SMA, sponsored us, donated and helped to create awareness for this event we thank-you from the bottom of our hearts! It was so great to see everyone on our team and all of our SMA family and friends come out on such a hot, humid and sticky Saturday to run/walk or roll your hearts out for a CURE! Over $100,000 was raised towards a CURE for SMA in just one day – WOW WOW WOW!

This event continues to blow our minds every year with how well it is run and the great vibe in the air! I think our SMA Angels make an extra effort to shine down on us for this day and our beautiful SMA Warriors are such role models with their amazing strength, positive attitudes and determination. I always feel like I have “bits and pieces” of conversations with everyone since it’s such a busy morning but those “bit and pieces” are always of great substance! To connect with SMA parents of beautiful children who are living and thriving with SMA, to connect with our family and friends who continue to share their support, to connect with other bereaved SMA parents is for us a gift in itself and we are grateful for the chance to come together as a community every year!

To my family, friends and coworkers who did some amazing fundraising for our team we thank-you! To Captain R. Wilson Public School where I teach, you continue to humble us as you raised over $600 towards a CURE for SMA!! Students held lemonade stands on the weekends, created posters and donated their loonies and toonies to come out and watch our awesome teachers and students play a very fair (tie -3/3) soccer match! Our junior and intermediate students went around to each classroom in our large school and spoke about SMA facts and sold awareness bracelets. Simply outstanding in every way!

It is on days like these that I feel Emersyn’s spirit very strongly. It is on days like these that I am beyond grateful to be a Mom of such amazing kids. I have a beautiful Angel who continues to stop and make people think, a little girl here on earth that brings happiness wherever she goes and a little boy on the way who has also helped to create more hope and love in my heart. When we have a “bad day” or feel like the difficult things in life are getting the better of us please let our SMA Angels and Warriors beautiful spirits remind us that loving and supporting each other can help create change in our hearts and in our communities and that is a very GOOD thing!

Thank-you for being a part of helping us to find a CURE for SMA all while honoring, remembering and connecting with Emersyn. We hope you all have a safe, relaxing and fun summer with your family and friends!

Lots of love, appreciation and hope,

Melanie, Jason, Isla and Angel Emersyn (and bun in the oven)

“But love does not die. The script of her life is written in my heart and it still glistens in the soul of my memory” ~

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