Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Monday, December 7, 2009

Decorating Emersyn's Special Spot......

Thanks for helping to decorate Emersyn's spot Auntie Cafrin, even in the rain you pulled through with us! This past Sunday we decorated Emersyn's resting place with two small Christmas trees and garland that wraps around her bench, and beside her remembrance wreath that sits on her stone stands a solar glass snow flake that lights up at night and changes colour. It was an extremely difficult thing for us to do, but with the help of our family we decorated Emersyn's special place. We hope it brings comfort to other families who visit The Garden of Angels. The Garden of Angels is a beautiful spot in the cemetary where only children are buried. We do not feel able to put up our "big tree" this year at home so we have put up a small tree that sits on Emersyn's special chest in our family room.

This tree is to honour her, she loved looking at all of the lights last year on the big tree and it brought us comfort during a very difficult time while we were waiting on her diagnosis. Emersyn was tested for SMA on Dec 13th and we received her results on January 24th 2009. We still feel that we are frozen in that ti...me period last year because for our family that is when time stood still. I remember saying to Jason last year while at the doctors office with Emersyn that it feels like we are in a snow globe watching the world go on around us while we are frozen in time with our child.

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