Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Thursday, December 24, 2009

Holidays.....

The pain and sorrow that bereaved parents live with every day is unbearable. This pain is even more intense during the holidays. Our "intact" family has a huge hole in it. Jason and I hurt beyond description for us and for all bereaved parents this Christmas and every day. There are no words to articulate how much we miss Emersyn and ache to have her here with us. We don't want to be strong or brave right now we want to just "be" where we are in our grief. We miss her! We are broken hearted! Of course we are! And we are not fine or ok or hanging in there, that is what we say to people to make the conversation bearable we hurt all the time, and that is the simple and painful truth.

Although Christmas can be a joyful time of year for many and that is truly ( and I mean this) a wonderful thing, it can also be an extremely painful time of year for others who are suffering for all sorts of different reasons. To all of the angels that I have had the honour to know, thank-you for the gifts that you have given us, we miss you and we love you.

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