Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.
Saturday, January 23, 2010
We Hear You Baby Girl Loud and Clear.....
One year ago yesterday on January 23rd 2009 our precious daughter Emersyn was diagnosed with SMA Type 1. Emersyn passed away three months later at the age of 7 months on April 7th 2009. One year ago yesterday.........is it coincidence that yesterday on January 23rd 2010 the GSF was awarded $100,000 towards SMA research...? We don't think so, we don't believe in coincidence anymore. Emersyn has made very clear points of "coming through" to Jason and I and make no mistake she had everything to do with this big step in the SMA community. We hear you beautiful Emersyn loud and clear! You are wise beyond your years and anyone who knew you could see that in your deep eyes.Miss you beyond words baby girl,Love Mama and Daddy xoxo
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