Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Saturday, May 1, 2010

SMA Television Interview

Please watch "Real Life with Sharon Caddy" on Monday, May 3rd at 4:30pm EST on CTS TV as Margaret Wallis interviewed Theresa Van Fraassen from FSMAC and the Klomp family on SMA. The segment airs about 3/4's of the way through the one hour show at 36:45.
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