Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.

Tuesday, July 14, 2009

Thank-you for 'Dancing in the Rain' for SMA.....

Hi everyone (this post will take up two wall spaces) ,We want to send out a huge thank-you to everyone who registered for and came out to the Rebecca Run for SMA on Saturday. Over $150,000 was raised for SMA research how amazing is that? I know the weather was not that great but it didn’t seem to stop people from coming out and running, walking or rolling for such an important cause. The day was filled with a roller coaster of emotions but most of all it was filled with love, support, remembrance, honour and hope. Our hope seems to come in so many different forms. There is hope for families like us that have lost a child to SMA that our grief journey will become bearable and that we will find ways to connect with our children and honour them whenever we can, there is hope that our children who have passed away will always be remembered and that they are happy and full of love and life wherever they are, there is hope that families and children who are living with SMA will have the strength to make it through another day, and of course there is the hope that we will one day beat this disease and find a cure. In our eyes and in the eyes of all children and families affected by SMA you are heroes for being a part of such... an important cause. Here is a quote that I thought was fitting since the rain was also a big part of the Rebecca Run this year:“Life is not about waiting for the storm to pass, it’s about learning how to dance in the rain”.
Thank-you for dancing in the rain,
Wishing you love, peace and hope,Melanie, Jason and Emersyn xoxoxoxoxoxo

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