Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Wednesday, July 14, 2010

Check out the Videos and Pictures of Emersyn's Entourage & The 2010 Rebecca Run for SMA!

We would like to send out a huge thank-you to our dear friends Nick and Becky Dean for creating this amazing video of the brave men from the 2010 Rebecca Run for SMA shaving their heads to help raise money for a CURE! A huge thank-you to a few good men from Emersyn's Entourage Nick Dean, James Wilson, James Dunsmuir, Dave Brannon, Adam Gizzie and Emersyn's dad Jason Klomp for signing up for this awesome challenge!

They started a trend and inspired others to join in and "Shave it Away for SMA”as Emersyn's Grandpa Pat, the wonderful Hayden MacIntyre 2006 Rebecca Run Honouree and his dad Ian MacIntyre all stepped up and shaved it off for a CURE! Way to go guys!The hype they created around shaving their heads helped bring our team to an amazing achievement of raising 20k for SMA at the Rebecca Run! The overall total funds raised by all teams at the event were a whopping $165,000 towards a CURE for SMA!! WOW! Truly amazing.

When you watch this video you can feel the love, dedication and heart that all of these guys put into helping all of us find a CURE for SMA! A big thank-you to Becky Dean for shaving all of those heads in record time you are awesome! Thank-you to Nick for not only shaving his head but for taking the time to video tape the head shaving moments. To view the famous Head Shaving Video please click here!

Nick has also created a video of the speech that Jason and I gave after the race. To view that link please click here!

To view our photo album from the 2010 Rebecca Run please click here!

An official update with details of Saturday's amazing event for SMA will be coming soon!

Sincerely,
Melanie,Jason and Emersyn xoxo

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