Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Friday, July 16, 2010

Emersyn's Entourage & The 2010 Rebecca Run - Thank-you!!

Hi Everyone,

We would like to send out a HUGE thank-you to everyone who registered and/or sponsored a member of Emersyn’s Entourage. Emersyn’s Entourage is a group of very dedicated people who had some outstanding fundraising ideas. Jason and I have seen dodge ball tournaments, dress down days, tennis tournaments, book sales, yoga classes, student/teacher soccer matches, friends who are willing to “Shave it Away for SMA” and collect pledges to help us meet and exceed our goal! As a result of everyone’s hard work we are thrilled to share that Emersyn’s Entourage raised an incredible $20,000 for SMA! The overall funds that were raised for the 2010 Rebecca Run was an amazing $165,000! The Rebecca Run was a huge success on every level thanks to all of the amazing teams, awesome race volunteers, directors and sponsors. None of this would have been possible without all of you! A special thank-you to Louise Smith, Cory Freedman and the Van Fraassen Family for the key role that all of you play in co-ordinating and organizing this event.

The Rebecca Run was a day filled with amazing people, families, sunshine, walks, runs, rolls, face painting, Tigers, music, Jasmine Richards from “Camp Rock” signing autographs for SMA, BBQ’s, head shaving, hugs, laughs, tears and many Angels. There is certainly something extra special about Fairy Lake with its whimsical trails, waterfalls and tall trees, such a perfect setting in nature. As soon as you pull into the park you truly feel like you have entered the Land of Angels. We could feel the magical presence of our Angel Emersyn and all of the other beautiful SMA angels at the race guiding us along the way. We were especially blown away by all of the amazing children with SMA who come out every year and help fight for a CURE! Natalie, Sarah and Rebecca were whizzing around selling the beautiful CURE SMA bracelets and zipper pulls that they made, great job girls they were a huge hit! Hayden MacIntyre who is an amazing boy with SMA Type 1 decided that he wanted to join in and “Shave it Away for SMA”! Way to go Hayden! You are so very brave and inspiring to everyone :-)

It was great to see so many smiling faces and open hearts at the run! We are very honoured, humbled and grateful that people took time out of their weekend to be a part of such a special day. The feeling of love, support, community and hope was so strong! We are also very grateful that the Rebecca Run brings SMA families together so that we can continue to support and lean on one another.

Thank-you for taking the time to stop, think, honour and act for our children who are living with and those who have passed away from SMA. Because of each and every one of you we are so many steps closer to finding a CURE for this disease. Because of you, Angels like our daughter Emersyn’s life, legacy and spirit will continue to live on. There is no greater gift you can give than fighting to save the lives of children and honouring those precious angels who have passed. From the bottom of our hearts we thank all of you for reaching inside of your hearts and igniting that spark that will continue to fuel the fire and passion towards finding a CURE for SMA!

We are honoured to have you as part of Emersyn’s Entourage this year and every year until we beat SMA!

Pictures of the day and videos of the Head Shave and post race Speech can be found at www.emersynpaige.blogspot.com just look under the post from Wednesday, July 14th 2010.

Thank-you for being brave enough to journey with us......

Sincerely and with so much love and appreciation, Melanie, Jason and Emersyn

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