Our beautiful daughter Emersyn Paige passed away from SMA Type 1 on April 7th,2009 at the age of 7 months old. This blog is dedicated to her life, legacy and spirit and our journey as a family through grief.





















































Wednesday, July 7, 2010

Emersyn's Entourage BIG Fundraising Update for SMA!!


Hi Everyone!

Looks like there is going to be a “Few Bald Men” who will have to “SHAVE IT AWAY FOR SMA” on race day at the 2010 Rebecca Run for Spinal Muscular Atrophy.

The numbers are still rolling in but we could not wait to share this exciting news! Emersyn’s Entourage has raised a whopping...

$18,687 Way to go team!!!!

The numbers are still rolling in and we expect this total to rise by race day. The final tally will be given at the race. We are overwhelmed, humbled and extraordinarily grateful for everyone’s passion and dedication towards helping us honour our daughter and finding a CURE for SMA. All of your love and support has given us the strength to continue this journey and fight for a CURE.

Here are some details for Saturday’s big event:
7:30 am Registration and Info Tent Opens
8:00 am Baggage Check Opens
8:30 am Chip Pick-up Opens
8:45 am Kids Fun Run Starts
9:00 am 3k Run/Walk/Roll Starts
10:00 am 5k/Run/Walk Starts
11:00 am Silent Auction Closes
11:15 am Awards Ceremony Begins

· Arrive early as parking is limited and it takes some time if you need to pick-up your race kit or drop off pledges (please remember to indicate that your pledges are on behalf of Emersyn’s Entourage).
· There will be a tent set-up for Emersyn’s Entourage as a gathering point for the team just look for the purple banner
· The head shaving will begin at the conclusion of the 5km walk/roll
· There is a free BBQ for registrants and free face painting
· For directions to Fairy Lake click
here.

Please let us know if you have any questions. We look forward to seeing everyone at the race!

Sincerely,
Melanie, Jason and our Angel Emersyn

1 comment:

  1. Truly amazing...you guys should be proud of yourselves. I am sure Emersyn is smiling down on her Mommy and Daddy tonight!

    ReplyDelete